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Advocating for a Child with ADHD – 504 or IEP?

10/04/10
by Susan Bruce

I’ve scheduled my daughter for a speech & language evaluation due to CAPD and potential expressive language disorder. She also has a diagnosis of ADHD Inattentive. Our school district goes to any means to prevent giving a 504 for ADHD. They say it does not substantially affect learning. How do I advocate for all her needs?

You need to get a copy of Section 504 and read it. Search the Wrightslaw website for information about Section 504. Contact your state Parent Training and Information Center (PTI) to see if they offer training on the topic.

Section 504 says that a child’s disability must adversely affect a major life function. Going to school is our kid’s job. It is a major life function!

The school says your daughter does not qualify for a 504 because she does not have failing grades. Get them to put it in writing.

A good way to do this without seeming adversarial is to use a comment like this. “Wow.  I did not realize that my daughter’s grades had to be failing for her to qualify for a section 504. Do you have a copy of that law and could you put that in writing?” Write a polite letter to the school with your request.

Look at this a different way.  A student has a physical impairment that prevents him from getting to class on time. He is making passing grades. An appropriate 504 accommodation might be more time to get to class.  Would the school deny this student a 504, just because he is making passing grades? How would that be equal access and opportunity? This is the promise of 504.

Eligible for an IEP under IDEA?

If my child had an ADHD diagnosis, I would request a complete evaluation.  ADHD often goes hand in hand with a learning disability. If your daughter has CAPD, then she should be eligible under IDEA for an IEP with speech/language services. The IEP should include accommodations for all of her needs. IDEA says school cannot deny a child services because she is passing and moving from grade to grade.

An IEP provides your child (and you) with more rights and protections than a 504 plan. If your daughter has a disability that adversely affects educational performance, she is eligible for special education services under IDEA.  If your daughter is eligible for special education under IDEA, she is protected under Section 504 (but the converse is not true).

This diagram always makes it easier for me when I am trying to help parents understand that a child with an IEP is covered by 504.

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91 responses so far ↓

  • 1 Brandy 09/15/14 at 8:00 am

    I submitted a request for testing from our private counselor whom diagnosed my 8 year old son with ADHD 3 months before school ended last year due to his focus issues and behavior problems in class. This year I attended an SAT meeting and offered suggestions in the plan that was agreed on by myself, his teachers, assistant principal etc, then last Friday written in his agenda was having trouble focusing. I agreed that we would wait 4 to 6 weeks to test him based on the results implemented in the plan but the teachers did not enforce the original plan agreed on at the SAT meeting. What are my other options?

  • 2 Dianna 09/08/14 at 10:51 pm

    My daughter has ADD. She is on medication. She is in 10th grade. The Special Education Coodinator will not write a 504 plan for her but will write down on paper accomodations for her which are shared with her teachers to implement in the classroom. She stuggles with memorizing, reading and does not spell well.She has been tested for a learning disability two times since second grade. She doesn’t quailify for anything. I worry about her when she takes the Ohio Graduating Test that will be adminsitered to her in the Spring. I also, worry about her with the A.C.T. I know if she had an I.E.P accommodations could be made to help her take these tests. She was tested in Second and Eighth Grade. There was a big enough discrepancy between ability level and achievement level. If it weren’t for the accommodations she would be struggling.

  • 3 helpgrouponline 09/08/14 at 10:10 pm

    Kimberly, there is a discrepancy formula that was used to determine eligibility for Special ed services This was a formula that showed a discrepancy between intelligence and performance. If there was a certain level of discrepancy the child was considered for services. This was a great formula for children with normal & high level of intelligence to get services. It is my understanding that there is nothing in the law that states that if a child is making good grades he does not qualify for services. All of my children were identified with learning disabilities when the discrepancy formula was used. I believe they may not have received much needed services if the RTI formula was used at that time. You can request an evaluation any time.

  • 4 Sharon L 09/08/14 at 9:30 pm

    Carrie,
    Yes you should persue changing the IEP. This is a change. I was told by my state special ed dept. that an OHI IEP can have scholastic goals on it if that is what the child needs. Perhaps you can set up a meeting and then discuss all of the issues.

  • 5 Kimberly 09/08/14 at 1:35 pm

    My son was diagnosed with combined type (hyperactive/inattentive) at 9, he’s 14 & in the 9th grade now. He also has an IQ of 151. I have been told by every school he has attended that he would not qualify for an IEP or 504 because his super genius intelligence makes it look on paper that his ADHD is not substantially impacting the major life activity of learning. He struggles with keeping up with work due to poor time mgmt & organizational skills & it is affecting his grades, yet they won’t even evaluate him. He’s constantly stressed and has D’s in several classes at the moment, yet spends countless hours on schoolwork. I’ve tried everything I can to help, including therapy, medication & organizational tools. Nothing has helped. His poor grades are solely due to late/missing assignments, not an inability to do the work. Need help please!!

  • 6 Concerned Parent 09/06/14 at 11:33 pm

    Can you please provide the specific statute that says that school districts cannot deny 504 accommodations to a child with ADD and learning disorders (working memory, audio and visual processing) because the child has passing or good grades?

    Thank you.

  • 7 Carrie 09/01/14 at 1:00 pm

    My 10 year old son has an IEP under OHI due to ADHD but we’ve recently discovered that he has moderately to severe dyslexia. We think that the ADHD diagnosis was given too quickly and other LD’s we’re not looked into. He has not taken his ADHD medicine for over 6 months and has been doing great, although he is still severely struggling academically. Since his IEP is under OHI due to ADHA and this may be a misdiagnosis, could this be detrimental to his ability to receive services? His IEP has mostly been for accommodations and modifications. Our public school does not teach an approved Orton-Gillingham method for dyslexics. Should we pursue changing the IEP?

  • 8 Jasmin 08/26/14 at 6:32 pm

    At what grade is a good time to ask for a 504 plan?

  • 9 Teresa 08/22/14 at 1:01 pm

    Recently the school decided to form a junior high which is 1.4 miles from my house. my daughter has adhd and ODD with other underlying issues not yet diagnosed per doctors. The school has refused to provide transportation for my daughter although i have told them in phone conversations and in writing that my child can not walk that distance alone. I fear for her safety because she is very defiant and the lack of attention leaves her at risk. I have attempted to allow her to walk with an adult following her without her knowledge and on several occasions she has crossed streets without looking,talked to strangers and completely just got distracted from where she should be going. can anyone help me. I do not drive and I have to go to work in the morning. I do not know how i am going to get her safely to school on a daily basis.

  • 10 SusanB 08/20/14 at 9:43 pm

    Have you requested the evaluation in writing? If not, make the request and in this letter say something like, “please consider the letter my informed, written consent to evaluate.” I would also demonstrate suspicion of disability along with “adverse educational effect” in my letter as well. Whether it be a medical diagnosis, failing grades, MISSING class time due to being in the principals office or suspensions, poor standardized test scores etcetera.

  • 11 Karie 08/19/14 at 1:12 pm

    My 13 yr old son has adhd & 504. He continues to struggle despite the accommodations. I have asked for a homework modification & been denied. His issues continue to contribute to falling/ failing grades. He needs more help. Does he need to be retested for an IEP. I have followed all recommendations for counseling and medication.

  • 12 Talethia 08/18/14 at 7:10 pm

    I was told my son (6 year old with behavioral problems) couldn’t get IEP or IDEA services because he is passing. Please help. He is always kicked out of school.

  • 13 Wrightslaw 08/15/14 at 10:47 am

    To Carly, re IEP for college.

    There are several issues in your question.

    Does a private school have to provide an IEP for a child with a disability? Answer-No

    Does the public sch have to provide that child with an IEP? Answer-variable, complicated. Begins with child find laws.

    Does a college have to provide a child with a disability with an IEP? Answer-no, IEP are based on IDEA 2004 which only applies to public schools, not higher ed.

    What does apply? Answer-Section 504 and ADA AA.

    On our website, left column, scroll down to Transition and read links on that page. Most recent is by Bartlett and is outstanding. She is the famous Bartlett in the landmark case v. NY State Bar, Board of Bar Examiners. Her case(s) on Wrightslaw.

  • 14 carly 08/14/14 at 8:53 pm

    My son had is IEP updated last in 3rd grade. He is a senior at a private christian school. How can I get his IEP updated for college?

  • 15 Christian 08/11/14 at 3:52 pm

    Hi my child has an IEP and is being denied preschool services because I’m a stay at home mom and of if their requirements at the school is that both parents work. But I’ve been told that it should not matter if I work or not that just because she has an IEP is all that matters.

  • 16 colleen 08/01/14 at 1:23 pm

    I wanted to find out if my kids can continue in the school they were in last year. They both have an IEP but we have moved to a different zone but same county. Its about 40 miles maybe a little less in distance to our home and the school. My son failed last year because of a car accident and got way behind. So can my kids continue in there old school? My son is going to the 11th grade and he doesn’t want to be in another school. I also feel he would excel in the school where he knows the teachers and they know all his needs and all his friends there. Can they go there and get public transportation? they both also have ADHD with IEP.

  • 17 Wrightslaw 08/01/14 at 11:21 am

    Patricia: Read the articles, information, and resources on the Wrightslaw Retention, Delays and Social Promotion page here: http://www.wrightslaw.com/info/retain.index.htm

    SusanB offers good advice. Scroll down the listing on the Yellow Pages for Kids for contact information for your state PTI.

  • 18 SusanB 07/31/14 at 9:13 pm

    Patricia, the IDEA does not address retention or promotion standards, that standard would be set by the state. In some states it may be an IEP team decision. If it is an IEP team decision, YOU are a member of that team. It has been my experience that retention does not work or help (research shows this too). Also good questions to ask are, does my child’s IEP address the areas he is struggling with, does it provide the educational supports and accommodations he needs so he CAN participate AND progress in the general education environment? To better understand your state’s policy on retention/promotion call your state’s Parent Training and Information Center.

  • 19 Patricia 07/25/14 at 7:38 pm

    I have some question I need to be answer if a child has an iep. Can a child get retain in a grade? I have child in 9th grade.

  • 20 Mike 06/19/14 at 2:18 pm

    The school district decided my child only needed help in two of the four major classes. She failed the two she did not have support in.
    Can the district just decide not to offer full services?

  • 21 kenya 06/09/14 at 12:16 pm

    My son was retained because of poor test scores and missing assignments. He was diagnosed at NIH for ADHD. I submitted paperwork to school. They did a 504 plan, he was never evaluated by the school. What are my options?

  • 22 Erin 06/08/14 at 6:49 pm

    My child has ADHD and is barely passing 2nd grade. He has been formally diagnosed with ADHD, ODD, and APD (auditory processing disorder) My specialists outside of the school. I requested an evaluation and he scored very high on the witt/wyatt (spelling) they told me he doesn’t have APD. And with his ADHD he only qualifies for 504, not IEP. He failed the state test and the teacher had to give to him in segments for him to pass. She recommends a 504. Is this something I am overlooking and not worry so much about IEP and just do 504? Also, how many days does the school have to put a plan into affect after i sign for it to take place? because it was at end of school year they pushed it off til next school year when they can speak to his new teacher about accommidations. Thoughts and opinions please! -Erin

  • 23 Trish LD 06/01/14 at 2:21 pm

    I have 1 paper w “Service Agreement” at top dated 5/31/13 (no f/u) after psychoeducation assessment done. I was told and has always been referred to as IEP.
    Her diagnosis is ADHD combined and Generalized Anxiety Disorder.
    At a meeting last week, the principal, who has never to been meeting prior, not on team and whose signature is missing, refused me when I opined HER suggestion of chunking wouldn’t work for my child. Her exact words “we are doing it anyway” I asked her to please be polite. She even more hostile and beligerant. I got up to leave, went back to grab paper she demanded “sit stand or get out”, I slammed door, she has since had EXTREMELY wrong meeting w husband stating my “overall bad appearance” filed w police and issued disorderly conduct warning at an ATTENDANCE meeting. What can I do?

  • 24 Lou 05/18/14 at 1:33 am

    My son has add, ocd and anxiety. Everyday chores and task are difficult for him. I was also told when he was younger that he had a developmental delay. So he’s very immature and naive for his age. Getting his school to understand his disabilities has been hard. He has a number of quirks and organization is rough. He currently has an IEP in place but I worry about next year and the 6th grade. Administration has made it clear they don’t believe there’s anything wrong and he’s simply being defiant. They’ve been clear in suggesting he change schools as he is at a magnet school for the arts. I’m at a loss. I’ve asked he be tested to see if he can be placed in a learning handicapped class so it’s smaller in size and allows him to pace or stand when he needs it. They say he tests well on the state testing, even though he’s failing in class.

  • 25 Cheryl 03/26/14 at 1:25 am

    Mariam,
    I am pretty sure this is something for a lawyer, your sons civil rights were violated and discrimination of ignoring he has disabilities but yet used his disabilities that ended him in a hospital with things done without your consent. It is hard to get to sue the hospital but you can file civil rights grievance and discrimination on school and find anything else you can to throw back on them. So sorry you went through that. I am now very scared for my little cousin I live with that is autistic that just started school last year and he is 7. he had the “melt down” and took all his clothes off except boxers and crawled under a desk crying until his mother was able to get to him and he was still hard to get home. Easily could have happened to him. He is at the most part actually calm and happy going. He hasn’t hurt anyone. good luck

  • 26 Samantha 03/25/14 at 12:02 am

    Hi my daughter is 8 and is in 1st grade. we have been dealing with ADHD and ODD for 3yrs now and last year she was turned down for an IEP. She transferred schools when the school she was at also turned her down for the 504, but even with the 504 at the school she is currently attending, they dont know what to do with her. Her current school said the other school tested her for the IEP, and said she cant get an IEP. Even if she did get one, it wouldnt be any different then the 504. I desperately need help. My daughter has been on meds for about 3 yrs now and i tried signing her up for SSI but she got denied. She keeps getting suspended from school and sent home every other day. Thank you if you have any suggestions.

  • 27 Mariam 03/18/14 at 4:31 pm

    My 7 year old son has ADHD, Autism, Anxiety disorder, sensory disorder. has been having a hard time with our family moving. He acted out at school cause they keep touching him. I called the Dr. & was told to bring him in to the ER to speak to someone to find out what’s wrong.

    No one spoke to my son & next thing I knew they had Section 12 him & taken his clothes away. My son was in the hospital APS depart. For 50 hrs from 3/5/14 without any signs of harm to himself or others they have medicated him against our wishes & refused to release him to go home. He stayed 7 days & was transferred to a mental facility for 5 more days.

    without my consent the hospital spoke to the assistant principal. The same assistant principal that refuses to acknowledge my sons disabilities or even add his disorders to his IEP. My son never hurt anyone.

  • 28 Jennifer 03/08/14 at 12:10 am

    My child has ADHD and has a 504 Plan. The teachers are aware of his 504 and his disability. My son has a teacher that is always pointing out my sons flaws with listening and focusing issues in class and has made it so my son is embarrassed to ask for help or to come to the teacher if paperwork/class work is lost. The teacher has gone as far as writing on my sons test stating, ” if you would pay attention, you would know…”. He has pointed out my son in front of the class when my child has not turned in assignments. I have repeatedly tried to work with this teacher and have not been fruitful. I’m at a loss.

  • 29 Wrightslaw 02/14/14 at 1:13 pm

    Jojo – You need to do your homework. In the Wrightslaw training programs Pete tells parents that they have to read Wrightslaw: From Emotions to Advocacy three times! When you read it the first time, you will see your mistakes and where you went wrong and wish that you could turn the clock back. You will go on an emotional roller coaster and become distracted as you read it. Thus the first time, read it, cover to cover, and recognize that the second time you read it, you will be able to start on your game plan. Your planning must include not just the present and this year, but even longer range. The book will help you get started. It is never too late!

  • 30 jojo 02/14/14 at 10:58 am

    I want to fight my son’s school has been adhd since first grade. He’s in the 11th grade now, had been kicked outta every school. And I’m just finding out about 504 or IEP.. I feel like the educational system failed him. . He’s again being kicked outta school. I wanted to fight it. I just can’t afford the attorney fees. .. so I feel like I’m failing him now. … plz help me if u know weekday I should do..

  • 31 Greta 12/16/13 at 10:07 pm

    My granddaughter is 11 and gets great grades but is very troubled by anxiety brought on by ADHD. This disability has been confirmed by both a psychiatrist and a neurologist to whom the school sent her. She currently has a 504 which isn’t working very well for her disability. They have denied the need for an IEP. My granddaughter, being very bright, figures out what answers they want to hear and feeds it to them such as that she loves school which is so not true. She hates both school and herself. She thinks she is ugly, fat, stupid, etc. but HUD it from the child study team. My daughter is so upset and needs some choices. She takes my granddaughter for therapy but there, too, she gives the answers they want. The 504 just isn’t working. What can we do?

  • 32 Tequell 12/14/13 at 4:31 am

    What if you requested a meeting with the IEP coordinator over a month ago and the meeting was never set up. I also called the board of education and asked for help to get the school to set up the meeting, but no response. What is the next step?

  • 33 Lisa 12/03/13 at 7:02 pm

    My 8 yr. old daughter was recently diagnosed with ADHD from her pediatrician. While I requested a special education evaluation to assess her writing and math (areas that are a challenge), I was told that she likely does not have an LD (although testing has not been completed) and that she would only qualify for a 504. How about her lack of response to interventions that have been tried? She is fairly bright and will likely do fine on the cognitive battery, while I am unsure of the achievement portions for math and writing. Is it just a lot of advocating on the parents behalf to get an IEP over a 504 and in the long run does it really matter if she gets the 504accommodations necessary to make academic gains? Can I get a 504 and if there is not improvement asking for specially designed instruction? I am also concerned about ESY w/o an IEP

  • 34 Karen 11/26/13 at 11:32 am

    To Dawn at Comment 1: The gifted programs are often less structured in middle school, which is a nightmare for an ADD child. Your daughter may also be experiencing effects to her learning from difficulties with executive function, which seems to begin to surface in middle and high school. You should ask for her to be re-tested for all aspects of learning. You should set up a meeting with the IEP coordinator. Push for a study skills class or time in your daughter’s schedule to allow her to catch up on work. Push for weekly check-ins with the teachers by the IEP coordinator to keep track of performance and missing work. Your daughter is working hard, but her disability is not allowing her to be successful. The school needs to provide supports now!

  • 35 Kim 11/26/13 at 10:38 am

    My son is eight years old and diagnosed with ASD, ADD,Motor Coordination Disorder, & sensory processing disorder. We have applied for an IEP and 504 for him. The school has turned him down for both because he is doing well academically well. My son is having a lot of problems staying focused and is easily distracted. He has made some failing grades on tests in the classroom, but passing grades at report card time. What can I do to get the school to accommodate my son’s disabilities?

  • 36 Dawn 11/20/13 at 3:14 pm

    My daughter has ADD and is also in the gifted program. This year is her first year in Middle School and she is in the top ranked middle school in our state, which is a Magnet school.

    My daughter has always been an honor roll student, often straight A’s, although due to her ADD, it always took a lot of work on both her part and the parts of her dad and me. She has an IEP in place becaause the gifted program is considered Special Ed.

    This year has been a nightmare. She is failing most of her classes, repeatedly forgets or does not do her homework and the work she does turn in is sloppy and sub-par. Her teachers say she appears not to even care.

    We have a conference at the school tomorrow and I want to go in armed with the right questions to ask so that we can get her motivated and liking school again. I feel so lost.

  • 37 Donna 11/18/13 at 4:34 pm

    Nancy .. First you should spend sometime on wrightslaw.com and educated yourself about what a 504 is ? ..You should contact your local CHADD group and ask to speak to someone who can help guide about what to expect having a child w ADD .. http://www.chadd.org .. Educate yourself about ADD and how it affects your chld and what you can do to help him at home and in school. You can contact your states PTI ( Parent Training Information center ) .. google it .. and you can ask them to help guide you thru questions you have ..Your child’s 504 can have modifications and accomodations written into it . if your child needs to be reminded about HW by a teacher or a buddy in class that can be written into the 504 .Child’s grades failing . request in writing for evaluations ..

  • 38 Nancy 11/17/13 at 1:29 pm

    My daughter was diagnosed with ADD three years ago. Never needed 504 because school was accommodating. We now live in Florida and school is not accommodating, particularly one teacher. My child struggles to stay focused, they are responsible for printing out their own homework at home on Monday and then turning it in on Friday. They’re not allowed to turn it in early. She forgets to turn it in and in two to three meetings with teacher, was never told that my child didn’t have AR points she needed to maintain her grade. She ended up with a C (for the first time) on her report card. Have 504 meeting scheduled for this week but I feel like they have already made their decision because they keep saying “her grades are too good to be on 504.” What do I do? I am trying to help my child and feel like I hit a wall at every turn.

  • 39 Beth 11/15/13 at 1:16 pm

    My daughter was diagnosed with ADHD, defiant disorder, mood/emotional problems, anxiety, and been on ADHD meds for a year now. My daughter is still having such trouble in school with the other kids teasing and laughing at her (I suppose you can say bullying), she has much difficulty with attention and social skills, she is having difficulty learning, difficulty with everything……and this is on her medication. I had a 504 meeting and I left this meeting feeling as if they were going to reject her already. What do I do? My daughter needs help and can’t work independently and the school has already made accommodations but she is still having trouble.

  • 40 Lea 11/15/13 at 9:23 am

    Christy, where do you live? I am an Atlanta-based advocate, and I sometimes work with families in other areas of the country, depending on the situation.

  • 41 Christy 11/13/13 at 4:15 pm

    I need help finding my son an advocate. He is in 6th grade and again is struggling. For the last 3 years I have asked the school to meet and determine if he is eligible for an IEP and every time We are told no because ADHD is not an disability. He has not been tested for a learning disability, The school will not test him. I am worried he will drop out when he reaches a certain age. He is punished for not getting work completed and not turning work in because he forgets. I feel like I am pushing a 1000 LB ball up a mountain. What do I do?

  • 42 Renee D. 10/18/13 at 9:50 am

    Dawn,
    I saw your post below re: IEP vs. 504. In your case, be thankful and don’t make waves. An IEP is much more robust than a 504 and they’re actually being honest with you. Under an IEP your son qualifies for more help, it is more legally binding, and will ultimately result in far better services (vs. 504). My ADHD son only had a 504, and it did nothing for him. My other child with an IEP received a ton more. This site has lots of info about 504/IEPs. Read it and you’ll see what I mean. In essence, congrats! You’ve landed on a better school in CT for your son than the one in TX.

  • 43 Jen 10/05/13 at 6:04 pm

    Maureen O, you could not be more wrong. My kids (one with bipolar/ADHD and one with SPLD) both get decent to good grades *in spite* of their issues, and that is only due to extremely hard work on their part and ours. What should take most kids an hour to complete may take my SPLD kid 6 hours to complete. He has an amazing work ethic and frequently falls behind because of the time it takes him to do his work. Teachers generally like him because of his work ethic, so they usually grant him extra time- but not always, and they aren’t required to, and he can’t get extra time on ACT or SAT. My ADHD/bipolar kid has no study or organizational skills, which an IEP would help him develop. I am sick of kids being penalized for not failing, which both would do without the help we (parents) and some nicer teachers provide.

  • 44 Dawn 10/01/13 at 2:57 pm

    My child had an IEP and was covered under section 504 in Texas..now his new school, in CT, does not want to cover him under 504.. They said he has all the protection under IEP, and 504 is for more general things ..’like a broken arm”. I’m confused? I this even accurate? Why would TX have covered him under both if that were the case? Help..

  • 45 Tsipora 08/15/13 at 1:59 am

    My son attends Texas A & M Commerce. He has ADHD. He cannot get help with his disability although the disabilities program has asked teachers to accommodate his handicap.

  • 46 DC1 06/29/13 at 6:43 pm

    Wrightslaw is loaded with information for students in public school.

    http://www.wrightslaw.com/info/iep.index.htm

    Good Luck

  • 47 Mina 06/28/13 at 9:54 pm

    I am looking for information to support my child who is in jail with ADHD. It seems his behavior continues to be difficult even in jail.

  • 48 Maureen O 06/25/13 at 1:23 pm

    As a special ed teacher I believe a student must be struggling academically to be eligible for an IEP. To have good grades there must be data backing those grades. Perhaps the student is getting a great deal of help to receive good grades. But, overall, a student should be demonstrating significant below grade level performance or not meeting grade level standards to qualify for IEP services. I believe we over qualify students for special education and their needs can be met in general ed with good teaching and research based intervention programs. If there is evidence this has been done in good faith and consistently and the student is still not progressing or meeting standards then an evaluation for special ed services should be completed. Some students will fall into the ‘basic’ range or be average performers…and that’s okay.

  • 49 Sue 06/25/13 at 10:19 am

    These comments are just heartbreaking. My 14 year old finally got a 504 in 8th grade, but not until after suspensions, grade problems – and he has a high IQ – the schools push back – Know the law first, find a lawyer if you can, and be the squeaky wheel, don’t let your school fail to provide what your child deserves! ADHD you can get a 504, the IEP you may have to fight for! It took us 3 years and we are still fighting but getting a little more of what we want. Good luck everyone… you’re not alone!

  • 50 paulette 06/07/13 at 11:02 am

    My daughter is 11 years old she is in 4th grade. She was diagnosed with a processing disorder. The school gave her a 504 and then said she needed a IEP. But then was turned down for the IEP and the 504 was taken off her. They said because she has good grades there is nothing wrong. I feel she is going to have issues later on. What can I do?

  • 51 10SON 05/21/13 at 8:19 pm

    I have a brother who is 18 yrs old and has been diagnosed with ADHD. He will be a Senior next year. He attends a private school and we have recieved many phone calls regarding his behavior. If you have a 504 are you suppose to tell the teacher you need more test time? Is this an option? He has been on medication and the medication has been changed and we noticed a behavior change. The school is constantly calling saying he did this he did that and I have requested outreach help. Is there anything else we can do possibly revaluate him to change the very vague 504 plan which who knows if the school or teachers even follow it. Please help

  • 52 Heather 05/03/13 at 8:33 pm

    I have an 11 year old son who is nearing the end of 5th grade. He has been diagnosed with ADHD, OCD ODD, anxiety, depression and a sleep disorder and was placed on an IEP in 1st grade. He’s been doing pretty good the last two years so I have not insisted on having an IEP meeting. We had one the beginning of 4th grade and here we are at the end of 5th grade. He is now beginning to have behavioral issues that’s affecting his education. He’d gotten an in school detention for 3 hours. Then he just got suspended for two days. I have read somewhere that the school is required to have an IEP meeting annually. Since it has been almost two years, does this disqualify him from the IEP? Or are they required, still, to hold a meeting when I request?

  • 53 Dawn 04/27/13 at 11:12 am

    I have requested an IEP meeting for my 9 year old with adhd, ocd, anxiety, and sleep disorder. she is on grade level or average for academics but in my opinion is struggling at school. the teacher states she is no different. She has cheated on a spelling test, interrupts constantly , lies, left the playground without asking, wonders the halls in the morning without making it to class on time, does not finish work , is at time very rude and disrespectful , talks, asks tons of questions, etc . I realize these would be considered nuisance behaviors but to me and her dr they are causing her to not function fully in class and at school. She is on concerta 54mg in am and 20 methyphenidate 3pm, buspar, ocd med, trazadone, guanfacine to function. The dr wants a postive behavioral support plan in place, advice? I know it will be 504 if anything.

  • 54 michael 04/25/13 at 9:58 pm

    my son is failing britisth lit and algr. 2 and bible. and he will have to take a summer class in may and when he grad next year he will more summer classes to get a dilp. he has adhd can you advise

  • 55 Sharon L. 04/14/13 at 3:49 pm

    Lisa, You will need to work fast to help your son. My oldest was also shutting down at the same age & we did not know what to do. We got help from a local chapter of LDA (Learning Disabilites Assoc). There are web sites with info as well. Have you had a Multifactored evaluation done by the school? If not you can request one in writing. Once you have done that get with the school to sign the consent form for the testing. THis is important since the 60 day time frame does not start until you sign the consent form. Request a copy of the test results before the meeting to go over with a professional (physician or advocate). You do not have to sign anything when you meet if you disagree. You may request an outside evaluation at the school’s expense. The school has to at least consider the results of the outside evaluation.

  • 56 LIsa 04/11/13 at 5:50 am

    I have a 9y/o that is ADHD. For the last 2 years he has pretty much made straight F’s. He should be going into the fifth but will be retained back into the third grade in the fall of 2013. I have fought with the school for an IEP and continually get denied. My child is shutting down. What can I do now?

  • 57 Sharon L. 03/29/13 at 3:54 pm

    STephanie, In order to get testing for our sons we put the request in writing & sent it to the special ed director & principal requesting to hear back within 5 business days & sent the letter certified mail to one of the people above. AFter 5 days if we did not hear back we would request a meeting to fill out the school’s testing consent form. Once this form is filled out & signed the school legally has 60 days to complete the test. This will help you get the process done faster. Once the testing is done you may request a DRAFT of the results to go over with any professionals you may want to in advance & you do not have to sign anything when you have the meeting to discuss the findings of the test. You may request a test be done by an outside professional if you do not agree w/ the results of the test at the school’s expense.

  • 58 Stephanie 03/27/13 at 1:54 am

    My son is already in an iep self contained classroom and was found through cmh to have high functioning autism. I’ve requested the school several times to give him at autism test and they have denied my request. can they do that? we live in mi. I rescheduled my sons iep and they had it anyways without even notifying me. can they do that ?? I feel like im fighting this huge fight to get my son the proper education. Please help

  • 59 Tamie 02/25/13 at 2:45 am

    My daughter is having trouble in her first year of high school. She was showing signs last year too, but she kept her grades up so we didn’t understand that there was a problem. She has a hard time understanding and following directions, also is confused as to what is expected of her quite often. And she has extreme difficulties in studying and testing in noisy settings. Her grades are still decent. What if anything, can be done to get things slowed down a bit for her to ensure her success? Thank you.

  • 60 Sharon L. 01/30/13 at 6:04 pm

    Maria, Having an IEP or 504 or both or neither depends on the specific needs of the child. Yes many people do not know that a child can be on both an IEP and 504 if that is what is needed. My ADHD son was on an IEP when young, later on a 504 & in high school on an OHI (other health impaired IEP ) because of his ADHD. All of these worked well at the time when he needed them. I am partial to the IEP because I believe there is clearer legal language in it & more options to get the goals and needs met.

  • 61 Maria 01/29/13 at 10:48 pm

    My son is in 8th grade and he has ADHD, what plan is better for him?
    IEP or 504?
    Thank you,
    Maria.

  • 62 Sharon L. 01/23/13 at 8:04 pm

    Nicholas, I have observed my sons many times throughout the years. I cannot just show up. I have to follow their process which in my area is to request the observation in writing, why & find out when I can come in in the next 2 weeks. I have never had an issue.

  • 63 Colleen 01/23/13 at 12:31 pm

    Can you define, “disability that adversely affects educational performance”? My son has ADHD and has an extensive behavior plan under 504. The behavior plan makes it possible for him to stay in the classroom (most of the time); however, he consistently fails math tests and is in the 17th percentile for math in the district’s tests. I’ve requested an IEP, but he has been denied because ‘there is no educational need.’ How can there be no educational need? Why can’t the behavior plan be inside an IEP?

  • 64 Nicholas 01/20/13 at 3:34 pm

    my son is haveing truble in one of his classes and i would like to know if i can accompiny him to his classes and sit in on them. i want to know if i do that can the school kick me off the campous. we live in CA.

  • 65 alicia 01/11/13 at 4:27 pm

    I need help because my daughter is not getting the help she needs at her school. I am lost and do not know where to go for help. Can you help me out?

  • 66 Emily 10/24/12 at 3:37 pm

    Hi
    I am looking for help. My 4th grade daughter has been diagnosed with ADHD and recently had testing done through her school which was requested by me. The results were that she would not receive services as she is “progressing”. At this point she has a D average in math and is struggling to complete homework assignments due to retention of information. I am very frustrated. The school is essentially telling me she has to fail before they will help us!!

    Any help/advice is greatly appreciated

  • 67 angey 10/04/12 at 11:19 am

    If a child has ADHA and is on medication and does well in school, without the medication he fights and no control does he qualify for a section 504 plan?

  • 68 Carrie 09/19/12 at 1:33 pm

    My daughter is 11 was diagnosed at 5 with ADHD/bipolar. I have been trying for the last 4 years to get 504 and/or IEP. I have had no luck since she is very smart and can make the grade. They threatened yesterday to suspend her for 45 days due to her behavior. I dont feel that is fair for my child who is having problems due to her disabilities. The doctors say she is the most severe they have seen at her age. She is medicated and topped out on the doseage. I take her to therapy every 2 weeks. I am doing all I can do and need help with the school. I am the only one fighting for her and I will NOT give up on my daughter. Any advice would be great. Thank you

  • 69 L Cole 04/05/12 at 2:35 pm

    My 8 year old grandaughter has had anxieties about her current school for over a year. It has been difficult to have her stay all day and on some days she doesn’t want to go at all. She gets physically ill at times. When she is excited about going, she gets bullied, singled out for one thing or another. She finally got and was denied eligibility for both an IEP and 504 Plan. She’s had two therapists and one emergency psychological evaluation. Testing twice has proven that her IQ to be 124-125. Now Child Services via the Public School system is trying to accuse the parents of Educational Neglect. What can we do next? A year ago we obtained an Educational Advocate who was never provided the requested documents from the child’s school. What next.

  • 70 Sharon L. 01/08/12 at 10:02 am

    Michelle, I would request a full blown evaluation in writing and then followup in 5 days. Sign the school’s consent form and then the school has 60 days to complete the eval. You can request a DRAFT copy of the results of the test to go over with a professional psychologist, physician or advocate. AFter you have the initial meeting you can discuss all of the issues. If you do not agree DO NOT SIGN ANYTHING. You may request an outside evaluation at the school’s expense and you do not have to use any of the school’s suggestions of where to get the outside evaluation. My son is dyslexic. We chose a professional that was an expert on the subject to do the outside test. THe results were very useful and we got a great IEP out of it.

  • 71 SusanB 01/03/12 at 11:03 pm

    Michelle. I would write a letter asking if his IEP should not address all areas of his disability. Actually, at this point, if my kid had language problems plus ADHD I would make a written request for a full blown eval. Often times (not always) a kid with ADHD may have some type of learning disability.

  • 72 michelle 01/01/12 at 3:22 pm

    My son is adhd and he also has a speech problem as well. he has an IEP in speech but they wont give him one for the classroom. I feel like they can they wont. he is on medication 3 types of everyday so I need help.

  • 73 Christine 11/07/11 at 6:30 pm

    Need advice. My nine year old third grader has inattentive ADHD, diagnosed two years ago. She was put on a 504 plan at that time however it is pretty vague. She had a wonderful teacher last year and her grades did improve, school has denied my requests to have her tested for additional learning disabilities both in first and second grade. This year her teacher is less than wonderful and she has F’s. I have her working with a friend who is a special education teacher with a masters degree, she tutors her once a week. She believes my daughter has a processing or working memory issue also. The school still is denying my request even with this info in hand. They are doing math and literacy intervention but will NOT test her or set up an IEP. I just want my daughter to get the help she needs. what do I do?

  • 74 Van Sher 11/05/11 at 2:49 pm

    Amazing- all the kids with ADHD and their parents are fighting the same battle in different places! My kid is 17, has ADHD, suicide watches, good and bad grades, not stable, self medicates and drugs, and I have to prove to a school with new or unqualified people that he needs an IEP or in his case, therapeutic boarding school. FAPE was proven in a hearing, but the school doesn’t have to abide. Hearing officers don’t know health characteristics of OHI or other related services, so parents fight against school districts, who have the last say, unless you chose to mortgage your house to get what should have been given and lawyers aren’t real interested on contingents as there is little or no monetary damages- Only in America!!

  • 75 Sharon L. 11/02/11 at 6:53 pm

    beth – The school is obligated to provide special ed services that meet the goals in the IEP.. If they have to bus your son to another facility than they must do this at no cost to you. However this sounds like a very restrictive environment but I am not sure based on what you have written. Your son is supposed to be taught in the least restrictive environment. You may need to have an advocate help you through this process. If you have a local chapter of the Learning Disabilities Association they may have someone or some information that can help. Wrightslaw’s various books are a wealth of information as well.

  • 76 Sharon L. 11/02/11 at 6:48 pm

    karentiberghien – Have you requested an evaluation from the school to determine if your son qualifies for services? If not, you have the right to request that and sign their consent form. If you do not sign their consent form they tend to wait and stall. Once you get the test results request a DRAFT version so you can read it and/or have a professional look at it. Then you meet with the team to discuss it. If you do not agree with the test results you may request an outside evaluation at the school’s request.

  • 77 beth 11/01/11 at 1:14 pm

    My son is 12yrs old; dx of ADHD, Asperger’s, and PDD. He is currently being served in general educaion, but is barely passing. He has been suspended 2x so far, in ISR 1x, and ASD 2x so far this school year for “behavior” issues. These behaviors are part of his dx. He has an IEP and BIP in place that the school is not following because they do not have a “special education” program. Under the “least restrictive environment” act, it says that if his behaviors are impeding the learning of himself and others he can be placed in “specail education” environment. What are the schools responsibilities now? Do they have to provide him with transportation to a facility (school) that does have the “special education program/class? I have been fighing this battle for many years and feel as though I am standing in front of a brick wall.

  • 78 karentiberghien 11/01/11 at 11:50 am

    MY SON IS 14 with adhd , anxiety, and ocd. SCHOOL SAYS HE DOESNT qualify for 504 because he is passing- he is smart and capable of doing the work.
    HIS BEHAVIOR Effects his abilty to pay attention in class. What do we do?

  • 79 Leon 11/01/11 at 11:44 am

    I am a school social worker in NYC and I have this question:

    If IDEA states that a child cannot be denied services simply because she is passing from grade to grade, how is that consonant with the Rowley ruling?

  • 80 LFK 06/14/11 at 3:12 pm

    At my oldest son’s IEP Eligibility Review meeting this year, the school decided to change his IEP status to a 504 Plan. Although he has ADHD and several other issues, the school felt that because his grades were excellent, he does not need an IEP. The Ed Diagnostician stated that he did not receive his modifications, that he did not need them, with the school psycologist agreeing. Other information was twisted to fit the school’s agenda in denying my son an IEP for the last two and a half years of High School.

    I accompanied at the meeting by a representative from a Parent Informaton Center so she could hear what the school’s IEP team said to me, and to spot student and parent rights violations. Although she was supposed to help with comments that were not accurate, she insisted that I sign the school’s forms.

  • 81 Christina 11/20/10 at 11:46 pm

    I have a daughter who has Cerebral Palsy and will be 6 in February. CP has affected her mobility and left side. She goes to school on Wheelchair/wlaker. She is and has been on an IEP since she turned 3 and started the Preschool system. She is doing very well academically and they are currently screening and doing tests on her to determine whether or not she will qualify for the IEP and down to a 504 this year… They are saying they are going to remover her from the IEP and we have a PPT set up next month. Can they do this? I heard from another mom whos daughter has Cerebral Palsy and is in the 8th grade and still continues to have an IEP. She says that I need to fight this because her daughter in 2nd grade began to have difficulties… So I’m afraid of this happening to her and then not being able to get her back on to an IEP.

  • 82 Sharon L. 11/19/10 at 11:41 am

    Michelle – I have had my child on a 504 plan and we were able to get all the accommodations/modifications and we did get a copy of books at home. You may also be able to get audio books via RFB & D (Reading for the Blind and Dyslexic) online. Look it up on internet and see if you qualify. We had to have our physician sign a letter that our son was dyslexic and he qualified for this service for free. We had difficulty getting the modifications enforced while my sone was on 504 so we got in on OHI (Other health impaired) IEP because he is ADHD. Once you do that you may use the IEP like any other IEP for modifications, etc. I believe it holds more weight than 504. The funding is different, also which makes a difference.

  • 83 Michelle 11/16/10 at 2:40 pm

    I have a son who is adhd and in high school and has some basic modifications in place with the 504, we wanted to make changes and implement more accommodations. The 504 Coordinator/Vice Principal did not want to implement all the modifications we requested, does she have the power to decide what’s implemented and what isn’t? We had 3 teachers present, not all the teachers could make the meeting. Also I requested my son to have a tape recorder in class, she came back and said no it violated the privacy of other students, if their voices were on it, is that true? Also we asked for a second set of books for home, and were told no, the state of Texas does not allow that, is that true?

  • 84 SusanB 10/21/10 at 8:55 pm

    Shawnee-Many kids with ADHD are to use your words “VERY smart.” Having a high IQ does not mean a child does not have a disability that adversely affects educational performance. He scored too high on a test? What test? Was it a comprehensive psychological evaluation or was it a screening? To determine eligibility under the IDEA a comprehesive evaluation must be done. A parent can request an IEE (independent evaluation) if the parent disagrees with the evaluation the school has done. QUESTION: Has the school done a real evaluation to determine eligibility or did they only do a screening? Read “From Emotions to Advocacy” and “Special Education Law” by the Wrights and contact your states Parent Training and Information Center. Also, some good reading on ADHD-anything by Chris Zeigler Dendy is great. Make yourself an EXPERT!

  • 85 Lisa 10/17/10 at 12:34 pm

    Our state law defines “Health impairment” as: “Health impairment” means an impairment that limits the strength, vitality or alertness of the pupil, including, without limitation, a heightened alertness to environmental stimuli which results in limited alertness with respect to the educational environment and which:1)Is caused by chronic or acute health problems such as asthma, attention deficit disorder or attention deficit hyperactivity disorder…,&, 2)Adversely affects the educational performance of the pupil. Our state law also has eligibility language that states a pupil is eligible for special services/programs of instruction if team concludes student has health impairment & team concludes that the pupil has a health impairment,,,which could reasonably be interpreted as adversely affecting the affecting the ed performance of student

  • 86 Sharon L. 10/16/10 at 10:45 am

    Kate – The first thing I would ask the school is to provide you the evidence that he does not qualify for a 504 plan or IEP. AFter that request a full multifactored test in writing and then get in there and sign the paperwork that the school has so that the clock starts ticking and they don’t take forever to do the testing. Once their paperwork is signed by you requesting the multifactored evaluation they will have 60 days to do the testing. Request to see the scores in grade level equivalents. They will probably not want to do this and try to talk you out of it but if you insist they should do this. It is easy to do from the raw scores of the test.

  • 87 Kate 10/15/10 at 2:22 am

    My son has a diagnosis of ADHD, he was diagnosed when he was just 4 y/o. He is very talented in art and music and until this year has always had good grades. I asked for information @ 504 and IEP for him and was told that he tests “normal”, with the rest of his grade. Basically I was told that he has to FAIL before they can do anything. I am so frustrated with this situation. Any suggestions to help me WIN against the school?

  • 88 Shawnee 10/14/10 at 12:50 pm

    My son is 17. Diagnosed with ADHD at 6 yrs. We’ve never asked for help until now. He is very intelligent but has struggled in school tremendously the last few years (flunked 2 classes & barely passing the rest). I researched IEP & 504 and thought he was eligible so we asked the school to test him. They say he’s not eligible because he scored too high on the test and that he just needs to try harder. I agree with the test results. He is very smart – but why is he flunking? I’ve asked the school to do more testing & they ask me what test I want them to do. I didn’t know so I took him to a psychologist. The school said they have to do the tests 1st before they’ll consider paying for an IEE. They just asked for permission to do psychological testing. I don’t think that’s his problem but agreed so we can rule it out. PLEASE HELP!

  • 89 Lisa 10/13/10 at 9:52 am

    My 17 yr old son was just diagnosed with ADHD…he has been “self medicating” and I am freaking out, I don’t know what to do next…is he too old to be helped?

  • 90 Michelle 10/12/10 at 9:20 pm

    You need to get “hatted” up on Section 504 and your daughter’s rights. Check out this great U.S. Department of Education article: http://www2.ed.gov/about/offices/list/ocr/504faq.html.

    Things changed in 2009 and it should be easier to get your daughter qualified now. They can no longer consider mitigating measures when testing, and may be applying an outdated standard.

    Getting an attorney can usually help if you can’t get anywhere by yourself.

    Best of luck
    Michelle
    Sacramento California Education Attorney advocating for the rights of parents and students since 1995.

  • 91 Ted 10/07/10 at 12:39 am

    Don’t forget the child needs to be in need of of specially designed instruction to qualify under idea.