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Cindy:  My son has been battling photophobia and a chronic vomiting. He now has clinical depression. School is treating truancy or offered a reduced schedule of 4 classes with homebound services. He will not be allowed to attend clubs after school. His vomiting episodes can cause him to miss school up to 10 days. He is unable to be in fully lit classrooms because light produces pain even with sunglasses on. Help! I has been a huge struggle just getting him to complete reduced assignments in 2 classes.
Does he have any rights under the law for continuing with 2 classes instead of 4 or can he attend the 1 class that he is now and have time to complete the other 3? Is it all or nothing when a child has a chronic illness? I am afraid that all homebound with no interactions with school will deepen his depression.

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I really feel for you! My child has a chronic illness and has episodes of vomiting! He certainly has a RIGHT to participate. Of course he is depressed right?! Then as a parent you get caught up in the beurocracy that is school! We have a fair bit of home school activities in Florida.You could try to find a group too? God bless you and your son!

Your child has a right to a free, appropriate education (FAPE). Children are different, their needs are different, and their needs change.

Suggest you write a letter to the Director of Special Ed and request a meeting to develop an IEP that meets his needs *now*. His IEP team may need to meet to revise his IEP several times during the year, if his medical conditions improves or gets worse.


An evaluation & input from medical staff could assist in addressing your questions. State rules can affect options available for such situations. Your state parent training and information center can assist you. http://www.parentcenterhub.org/find-your-center