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Wall Street Journal Recommends Wrightslaw as Resource for
Parents of Disabled Children

In For Some Parents, the Care Can't End, a hard hitting article about parents of disabled children, Wall Street Journal reporter Kelly Greene recommends Pete & Pam Wright & Wrightslaw as "Advocacy resources for parents of children with disabilities." (July 2, 2002)

Greene shines a bright light on an oft-forgotten group, "Parents whose children return to the nest after they are struck by a dread disease, or who have developmental disabilities that prevent them from ever leaving in the first place. The group is so little noticed that in November, 2000, when Congress created the National Family Caregiver Support Program, it offered virtually no aid to parents caring for adult children."

"Still, an estimated 2.7 million adult children with developmental disabilities live at home with a family caregiver. One in four live with a caregiver who is 60 or older. No one has even tried to count parents caring for older children with cancer, AIDS, and terminal illnesses like Huntington's. But the numbers are growing as medical advances extend the lives of the ill and disabled."

"In response, lawmakers and businesses are starting to help. Several state and local governments are jumping into the 'respite' business -- assembling pools of temporary caregivers who can give parents a much needed break and, in some cases, helping to pay for such services. At the same time, groups such as the National Respite Coalition, based in Annandale, VA, are pushing more states to offer similar help."

Seeking Relief
Parents caring for grown children with special needs have limited resources they can turn to. Here are some starting points:

  Contact What it Provides
Respite Care
ARCH National Respite Network & Resource Center

State by state list of more than 2,300 local respite services.
Pete and Pam Wright / Wrightslaw

Advocacy resources for parents of children with disabilities
  Brian Rubin

Letter of advice to parents and a guide to writing an "information letter" to future guardians and trustees.
Financial Planning MetLife Inc. or
(877) 638-3375

Division of Estate Planning for Special Kids, or MetDesk, offers financial planning and other resources

Merrill Lynch & Co.

Special Needs Financial Services calculator helps parents estimate a child's lifetime financial needs

To read the full text of For Some Parents, the Care Can't End, go to the Wall Street Journal site and search for articles written by reporter Kelly Greene.

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